Completion of Round 2

This proved to be very difficult for Jamie. After the problems of Thursday, we were experiencing different problems on Friday afternoon with Blood pressure. Basically his blood pressure was too low and could not be stabilised. His lips had no colour in them but blood and platelets given and things seemed a bit better. John was taking over from me and when I thought things were okay for me to leave I left to go the Ronald McDonald House. 10 minutes after sitting down and thinking about Jamie, I had a call to say that Jamie was in intensive care.

I rushed straight back to the hospital, collected the things from the room [we had to pack the room up too] and a nurse took me up to ICU. Jamie was fine to look at but the low blood pressure was causing concern. The antibody had to be STOPPED. He had managed 7 1/2 hours out of a 10 hour infusion. We were gutted that it had to be stopped but for Jamie's health it was the best thing.

Oncology suggested that they start the next infusion as planned on Saturday but 2 hours before the IL2 and for over 20 hours instead of 10. This seemed to work. Did he tolerate this well??? If you can call screaming with pain as his mouth and face began swelling and going crazy, then yes, he did tolerate it well without too many blood pressure issues.

It's been a long weekend up here in ICU with Jamie's strength and character the most difficult to deal with! At the moment he is very swollen and has so much fluid in him but he has managed to complete the IL2 and ch.1418 together!! Pheww!! It was a bumpy ride and at one point we thought about taking him off this programme completely. Seeing him in so much distress was awful but now things are improving and he should be going down to his onco unit later today.

WHAT A STAR!!!!

Bye for now...