Just waiting...and waiting...for Jamie to come out of diagnostics. He has been under GA now for over 2 hours. There is so much testing to be done and I hope he is not in any pain from the bone marrow aspirates.
Some of the team from radiology were there and Jamie beamed his great big smile at them! One of the nurses took him off in search of more of his nurse buddies!!! Jamie was so pleased to stay at the RM House and see all of his friends!! The Rogers family [Stella Rogers] had their film crew out, following the next phase of anitbody treatment and the reporter said she would film us and pass it back to BFBS, Yorkshire and WDR in Germany! It was a very short piece about the support we have here, i.e. meeting and sharing stuff with other families in the RM House. We weren't really prepared to do it so as it was done off the cuff, there will be a lot of editing needed!! I should be used to this by now but it is still weird!!!
We got totally lost driving from Bucks County to Philli yesterday and ended up having to go back over the bridge into New Jersey. We basically knew where we needed to be but the sign did not give us the option once we had come off the highway! Arghh!! The sign posting is totally inadequate for novices like ourselves. I think Jamie has heard all the expletives that exist now!!! Woops! Still we were only 10 mins late for our hospital appointment!!!
We should have the results from all the tests by Friday so all we can do is wait and hope that everything is fine and that there are no Neuroblastoma cells. As they say at the Children's Hospital of Philadelphia; Hope Lives Here... Lets hope that Jamie is still smiling :o)
2 comments:
Just to say wishing you all the best for the results. You are all doing so admirably, and I'm so proud of Vicky for driving there. Well done. lots and lots of love
flo xxx
I am hopeful that the green light is given on Friday and that the Immunitherapy Treatment can be started ASAP. I am so looking forward to coming out to see you all at the end of May. I have touched base with my new unit which I start at a week on Monday and leave is all secured. Will book the flights in the next week or so and email you with travel details. Excited?.......Who's excited? Not Uncle Tom ....MUCH!!!!! Tell Jamie I love him and can't wait to have a shot on the slide in the park with him.
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